Transforming Cancer Navigation with Open Data & APIs

The Transforming Cancer Navigation with Open Data & APIs Challenge is designed to inspire data enthusiasts  and innovators to develop cutting-edge solutions that improve the cancer patient navigation experience. Cancer patient navigation is the process of guiding patients through the healthcare system, ensuring they receive the support and services they need throughout their cancer treatment, and it remains a critical challenge, particularly in underserved communities. Existing cancer navigation apps often fail to incorporate open data or leverage APIs, resulting in significant disparities in accessibility and inclusivity, and missing a major opportunity to become more integrated and expand cancer insight through data integration. This challenge calls on solvers to leverage open datasets and APIs into innovative solutions that improve cancer patient navigation, specifically in screening for patients’ social needs, monitoring for quality, scheduling appointments, and ensuring connections to all available services. Participants are encouraged to incorporate AI-ready datasets and sync with social need APIs to address social determinants of health.

The challenge sponsors, Robert Wood Johnson Foundation with AcademyHealth, invite you to play a pivotal role in transforming cancer patient navigation by contributing datasets to this groundbreaking initiative. By making your data available to solvers, you’ll help drive the creation of innovative solutions that improve patient care, reduce disparities, and empower millions navigating the complexities of cancer treatment. We’re looking for datasets that enable solvers to address social determinants of health, enhance care coordination, and integrate advanced analytics into their solutions. Examples include clinical outcomes, patient demographics, genomic insights, public health resources, or social service connections.

Cancer patient navigation is not accessible to all, and the technology surrounding it is often developed without inclusivity and progressive advancements in mind. Recognizing this shortcoming, there is a growing effort to increase both the supply and the assessability of cancer navigation services. As part of the Cancer Moonshot program, several initiatives aimed at increasing access to patent navigation services were recently announced. These efforts include commitments from leading health insurers and oncology providers to make these services accessible to over 150 million Americans. Additionally, in 2024 Medicare began covering navigation services, further enhancing accessibility​. Cancer patient navigation is a process in which Navigators, often humans supported by technology, guide patients through the complex healthcare system by screening for social needs, monitoring care quality, scheduling appointments, and connecting them to essential services.

This challenge calls on solvers to expand and enhance patient navigation, leveraging open datasets and APIs. Your challenge is to create solutions that are inclusive, user-friendly, and capable of providing comprehensive support to cancer patient Navigators, helping them perform their duties more effectively. These solutions could improve patient outcomes by reducing diagnosis-to-treatment times, ensuring treatment adherence, and addressing social determinants of health such as food, housing, and transportation needs.

Cancer patient navigation remains a critical challenge in the US, particularly in rural and underserved urban areas, where significant disparities in healthcare access and outcomes persist. The lack of integrated data makes it difficult for patients to receive coordinated and efficient care. As a result, many patients lack the guidance necessary to manage their treatment effectively.

Patient navigation aims to address these barriers by guiding individuals through the often complex healthcare system, particularly in cancer care. Navigators, usually humans assisted by technology, play a vital role in ensuring that patients receive the support they need. They are charged with four primary responsibilities:

1. Screening for social needs: Identifying factors like transportation, financial strain, and housing that could impede a patient’s access to care.
2. Monitoring for quality: Ensuring patients receive appropriate, timely, and high-quality care throughout their cancer journey.
3. Scheduling appointments: Coordinating with healthcare providers to ensure timely consultations, treatments, and follow-ups.
4. Ensuring connections to available services: Linking patients with community resources, financial assistance programs, and support groups.

These roles are crucial for improving patient outcomes and reducing disparities, but they are significantly enhanced when supported by comprehensive data. Data integration enables Navigators to track patients’ clinical and social needs in real-time, identify gaps in care, and tailor interventions based on predictive analytics.

As part of the Cancer Moonshot initiative, commitments have been secured in addressing these issues. This initiative has secured commitments from leading health insurers and oncology providers to expand access to navigation services, benefiting over 150 million Americans. Medicare’s inclusion of navigation services starting in January 2024 marks a significant step forward in making these services more widely accessible.

The evolution of cancer datasets has revolutionized our ability to understand, diagnose, and treat cancer. Over the past few decades, projects like The Cancer Genome Atlas (TCGA) and the National Cancer Institute’s Surveillance, Epidemiology, and End Results (SEER) Program have provided comprehensive genomic, clinical, and demographic data. These datasets enable researchers and healthcare providers to better understand cancer progression, develop targeted therapies, and tailor patient care based on genetic profiles.

The Challenge

In this challenge, solvers are tasked with creating or enhancing cancer patient navigation apps and services by incorporating open datasets and leveraging APIs to provide a superior navigation experience. The goal is to design solutions that significantly improve the accessibility, usability, and effectiveness of patient navigation services, particularly for underserved populations.

Solutions should demonstrate how they benefit or enhance the navigation experience for Navigators, patients, or caregivers. Emphasize patient-facing features to ensure the app is user-friendly and directly benefits the patients.

Key objectives of this challenge include:

• Help Patients Aggregate Medical Records: Solvers should leverage the emerging TEFCA for individual access service (and related “patient right of access” APIs) to organize a longitudinal health record that is ready for Navigator access, and advanced analytic uses.
• Utilizing AI-Ready Datasets: Solvers should integrate advanced analytics, machine learning, visualization, and AI-ready datasets to inform and enhance the navigation experience. These datasets can include clinical data, genomic data, treatment outcomes, and patient demographics to provide personalized and predictive navigation assistance.
• Integrating Open Data: Current navigation apps often do not utilize APIs and open datasets. Solvers must incorporate open data into existing apps or create new solutions that make effective use of these resources. Open data sources can include public health databases, cancer registries, and other relevant datasets.
• Syncing with Social Need APIs: Incorporate APIs that address social determinants of health, such as housing, transportation, food security, and other social needs. These APIs could help in screening and connecting patients to the necessary social services that support their treatment journey, for example.
• Adopting Social Determinants Screening Standards: Include standardized screening for social determinants of health to identify and address barriers to care. This could help in providing a holistic approach to patient navigation, improving overall patient outcomes.
• Demonstrating and Presenting: Solvers will be required to demonstrate how they have integrated open datasets to enhance the navigation experience, showcasing the functionality, its ability to improve patient outcomes, and how it addresses the challenges faced by patients, navigators, and caregivers.

Awards:-

The total prize purse is $50,000.

Deadline:- 13-01-2025

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